This post is about my opinion on things having to do with autism. 

When Jenny McCarthy came out with her first book, I was dismayed.  She claimed her son was cured of autism.  I thought by coming out with that she was setting some parents up for failure.  The methods she used to help her son are not necessarily going to help everyone.  I also think that there's no cure of autism.  Autism's symptoms can diminish, but it takes a lot of work.  My son can converse with people but it doesn't mean he doesn't have communication problems.  I'm thrilled that she was able to help her son to such a level, I just think she shouldn't have been touting it as a cure.

I am thrilled with all the attention autism has received in the past years.  Autism Speaks is an organization that has come to be because of the attention.  It's a great organization that raises funds for research.  It's this research that worries me.  They are looking for a cure.  They are looking for the gene that causes autism.  I think once they find that gene, we'll start testing for that gene marker.  What happens when you have it?  Will it be like the screening they do for Down's?  How many babies will die from that?  Also, instead of just raising money for research, I wish these organizations would raise money to help families pay for therapy.  There are so many children out there who would benefit from certain therapies such as ABA.  However, it costs a bundle.  Some children require 40 hours a week of ABA.  It costs too much money. 

I am blessed to have good insurance.  I don't like our hospital system, but I do like that our insurance company pays for Brother's therapies.  We are enrolled in an extended program that pays for his ABA therapy. 

Now, remember, these are just my opinions.

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4 responses to “Autism Awareness–My Opinion”

  1. Liz Avatar
    Liz

    I couldn’t agree more… it’s sickening how much ABA therapy costs and it breaks my heart that it’s not available to all kids.

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  2. Sue Avatar

    I am also terribly worried about the possibility of prenatal screening and the implications that will follow if they isolate a gene or some other strong marker. It makes me tremble to think of it.

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  3. Mark Schmidt Avatar

    You’re right on track — and you are fortunate to have good insurance. Too many families don’t. That’s why US Senators Durbin, Casey and Menendez have sponsored the Autism Treatment Acceleration Act of 2009. This landmark legislation will give families the resources they need.
    Senator Durbin worked with a variety of organizations, including Autism Speaks, ASA and The Autism Program of Illinois (TAP) while drafting this legislation. He is a real leader. We were proud that he came to TAP for his first media event on the new bill. You can view the news coverage on our YouTube channel: http://www.youtube.com/watch?v=JCxcnzdTlC8.

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  4. ADHD Therapy Avatar

    I’ve being researching about Autism and reading your blog, I found your post very helpful 🙂 . I thought I would leave my first comment. I don’t know what to say except that I have enjoyed reading. Nice blog!

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