When my son was diagnosed with autism, I had just found out the day before I was pregnant with Pumpkin.  It was a very bittersweet time for me.  I felt overwhelmed by many emotions.  I was riding a high from the positive pregnancy test and then I crashed with the news that Brother did indeed have autism.  And, my low was tempered by the knowledge that there's a name for all of Brother's issues.  There were many moments when I had been feeling a failure as a parent because things just did not work with Brother.  

I also grieved for what might have been.  What kind of man would he have grown to be if he were "normal"?  Was he going to be independent?  How was I going to ensure he was taken care of for the rest of his life?  What kind of a big brother would he have been?  With all of his successes, those fears and thoughts started to disappear.  I thought I had gotten a handle on those emotions.

They have started to rear it's ugly heads again.  As Brother has grown and developed, different issues have come up.  He doesn't have any close friends.  You know, a friend who will play/socialize with you even in a group situation.  One that doesn't just spend time with you when there's no one else but because he likes to be with you.  He has friends.  Friends who play with him.  But, no one special.  He wants to have a great friend.  But, his lack of social conversation, his inability to read social cues, his inability to just jump into a game and play have hampered him.  I see other boys when he's with them and their eyes glaze over.  

I see other boys avoid him.  I hear other boys call him the annoying one.  I know what it's like to converse with him.  It can be like Groundhog Day; the same thing over and over again.  But, as an adult I can steer him to other topics and move him on.  

So, the grief still lingers.  I HAVE embraced who he is, but I'm still sad for what is not.  And, not for me, but for him.  I don't want him to be lonely.  I want his life to be easier.  What mother wouldn't?

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5 responses to “Autism Awareness ~ Grief”

  1. Paula Avatar

    Oh KC. Hugs my friend.

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  2. Ute Avatar

    Every mother would. You are right, and your grief is valid. God bless you and your son!

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  3. Barry Smith Avatar
    Barry Smith

    I know how you feel. My son fills my heart so full it hurts, yet some days it breaks wondering where he will go when I die. Who will take care of him. Will they do a good job. I do hope the Heart Ranch is open and in full swing some day so I can have him go there.

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  4. Denise Avatar
    Denise

    I found your blog through Mary Ellen’s. My 8 year old has AS, and I so feel your pain. I have the exact same worries. Even though your brain says that God will care for all His children, your mother’s heart bleeds. We’ve known ds’s diagnosis “officially” for 18 months, in our hearts for over two years, and I still have periods of intense grieving.
    I keep telling myself to focus on his successes, small though they might be. Each is a step towards him becoming a better conversationalist, friend, brother. I also can’t sight of my neurotypical children, who indeed will have their own “issues” and challenges that can’t be underestimated!
    God bless you and your family, my prayers are with you, and keep on keepin’ on.

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  5. bwya Avatar

    I can only imagine the heartache it all entails. And still, as you know, it is true that God will take perfect care of him. He gave him to you and to Ben because you are the right parents for him. Trust in that in the hard places.

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